We are all on our own paths through life, but what makes life interesting is when our paths cross – Me !!!
Ibis at Tyrendarra, South West Victoria, Australia
I just thought I’d kick this new adventure off with a bit of a tranquil sight of these beautiful Ibis flying over the wetlands of the Tyrendarra Indigenous Protected Area I snapped a few months ago. Although they aren’t the most attractive birds, there is something so graceful about their flight.
I love to get outdoors to witness nature in all it’s glory. Whether it be an early morning sunrise, with the pink and orange hues breaking through the black of night and banishing the dark from the sky, or a wild thunderstorm sending bolts streaming across the sky, there is something so humbling being able to witness it all unfold. No two sunrises or thunderstorms are the same.
I guess that’s what helps get me through the day. The chance to witness something amazing. Most days are a real struggle. It’s very difficult living with a chronic illness like Fibromyalgia. For those who don’t know, it manifests itself in many ways, there are a multitude of symptoms, but the most debilitating, from my point of view, are the constant pain, and the ever present fatigue. Between nature, and my son Jack, I manage to get up every day, even when I feel like it is an impossibility.
There are a bunch of other unpleasantries associated with Fibromyalgia as well, like irritable bowel syndrome (IBS), joint stiffness, super sensitivity to temperature, super sensitivity to light, super sensitivity to anything that touches your skin, I mean, it is really not nice at all.
Recently, I have had a few visits with specialists to adjust treatments, it’s a chronic illness that is poorly understood, they don’t even really know what causes it or what exactly is going on, and you can’t continually take ever increasingly stronger Opioids for ever, so I have recently started on some new medications in the hope of getting some relief from the symptoms.
In the past 12 months or so it has become a lot worse, and that is the thing, that’s what it does, it gets worse and worse over time. It takes a lot of willpower and intestinal fortitude to keep going.
Apart from the medicinal efforts, I do a lot of what is called distraction therapy, I was doing it well before I even heard it was a thing. That’s why art, photography, writing, all that stuff is such an integral part of my life. It is something I can immerse my mind in to ignore the pain. It works well, about 50% of the time. I’ll take that 50% if it means that whilst it is working I am not shoving pills down my throat to stop the pain.
I have been on my new medications for about 2 weeks now, I am in a transition phase, which means I am getting used to these, before I start coming off the other things I have been taking. In 2 weeks time, it will be D-Day, when I start to reduce my reliance on the Opioid based painkillers. The new drugs have made a difference, it tangible, but a bit hard to explain. It is a lessening of the pain, which in my opinion is the worst symptom, but in a weird way. There is not a moment in at least the last 5 years where I haven’t been in pain. The painkillers lessen the severity from intolerable to slightly less intolerable, but it doesn’t ever go away. Oh, pardon me, there was once, about 3 years ago now, when I had a fall and was on Endone for a couple of days, I didn’t feel anything, let alone pain, on them !!!
Anyhow, I think I better get myself off to bed, tomorrow Jack has school, so I will have to drag myself into the day at 7am, and seeing it is now nearly 11pm, I won’t have a great deal of time to enjoy another restless sleep, hopefully getting enough rest to manage another day.